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We want to hear from people who have Long Covid and caregivers of children with Long Covid.

Please note: This survey is intended for residents of Canada only.

We encourage you to take your time responding to avoid crashing. You can leave the tab open and come back to the survey when you can.

This survey is designed to help inform and shape the Canadian Covid Society's advocacy efforts on Long Covid awareness, policy, and communications.

Your responses will be kept confidential.

If you have any questions about this survey, you can contact survey@covidsociety.ca.

I give my consent to participate in this survey and for the collection of my responses to the questions in this survey. I understand that my responses are anonymous, that I will not be identified in any reports or summaries of this survey, and that my responses will be kept strictly confidential to those who are administering this survey and performing the analysis. *

Contact Information

We are asking for your email primarily as a way to track duplicate responses. We are also including optional opt-ins to contact you.

Email Opt-In (please check all that apply)

Demographic Information

The following questions allow us to see differences in views across ages, regions, community types, and other demographics.

Your responses will be used in aggregate to inform the Canadian Covid Society’s advocacy, public communications, and other projects. No individual responses will be identified.

Which of the following best describes you? *
Please answer the following question about your own age if you have Long Covid, OR about your child's age if you are responding as a caregiver of a child/youth (under age 18) with Long Covid. *
What is your cultural/ethnic background? (Please check all that apply.)

Long Covid: What's Important to You

Covid Prevention Strategies

We want to know which strategies for preventing Covid reinfection (which carries the risk of worsening Long Covid) are most important to you.

Please rate each option below, from Extremely Important to Not At All Important.

Require the use of respirator masks in all health care settings to protect Long Covid patients (and everyone).
Ensure availability of Novavax to help protect people with Long Covid and the general public.
Ensure access to Metformin and Paxlovid, which may be helpful in reducing the risk of worsening Long Covid.

Long Covid Funding

We want to know where you feel Long Covid-related funding should be allocated.

Please rate each option below, from Extremely Important to Not At All Important.

Funding for Long Covid research in biological mechanisms (how Long Covid affects body systems).
Funding to increase disability benefits to ensure no one with Long Covid (or any other disability) lives in poverty.
Funding for research on repurposing existing medications for the treatment of Long Covid.

Illness Management and Resources

We want to know which Illness Management options and Resources are most important to you.

Please rate each option below, from Extremely Important to Not At All Important.

Recognize Long Covid as a disability, to ensure access to resources, benefits, and rights.
Require education of health care professionals in how to recognize and diagnose Long Covid as a biomedical condition.
Establishment of interdisciplinary clinics in every province and territory to support improved Long Covid treatment.
Access to a Long Covid physiotherapy program that focuses on individualized pacing.
Access to Long Covid peer support group programs.
Should the cost of Long Covid physiotherapy programs be covered by provincial health plans?
Should the cost of Long Covid peer support group programs be covered by provincial health plans?

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